Cannabinoid Oil And My Son’s Tic Disorder

Cannabinoid (CBD) oil has been a godsend since I found out my son was diagnosed with a tic disorder.

oilIn late October of 2016, my 7-year-old son, Lincoln, was diagnosed with Transient Tic Disorder. It’s fairly easy to say that this moment shook me like I’ve never been shook before. I have never been so scared in my life! I’m sure all fathers out there have experienced the hopelessness of having a sick child. It’s excruciating and overwhelming.

Around late August, I’d noticed Lincoln had started this heavy, exaggerated blinking. I didn’t think anything of it, initially, as I used to do the same thing as a kid…and still do occasionally. Back in the day, my parents thought it was some strange habit I’d picked up. Within a few weeks, Lincoln’s blinks had increased in rate and exertion. He’d also started rolling his eyes in really pronounced ways…sometimes so hard that he’d turn his head to the side.

Then, almost suddenly, he was experiencing these episodes that were like seizures. His eyes were rolling back in his head, his tongue would go limp or roll in his mouth. His face would grimace. His hands, feet and limbs would twitch erratically. And he would make these noises…groans, growls and moans. Sometimes he’d whistle or repeat words during these spells.

The episodes would last between 5 and 45 minutes. It was painful to watch. Especially, when he’d come out of the episodes with no recollection of what he’d just experienced. He could not hear us calling his name or feel us holding him while he endured these episodes. He’d snap out of them confused, exhausted and in physical pain.

From September to November, we’d made countless trips to the ER and doctor’s appointments, including spending Thanksgiving in the hospital Epilepsy Monitoring Unit. We were relieved that seizures had been ruled out. But, the thought that the tics were causing this much chaos was unnerving. We also had to remove Lincoln from the school bus and set up a treatment plan with his school, as he was sensitive to loud noise, bright lights and rapid movement. We were also advised that if the motor and vocal tics continued for a year, Lincoln would be diagnosed with Tourette’s Syndrome.

During this entire process, we drastically altered the family diet, eliminating dairy, white sugar and taking meat out of the house, except for one meal on the weekends as sort of a cheat day. We also started a daily essential oil regimen, using doTERRA oils. The Frankincense oil was a major support . Overall, we saw some healthy results and improvement from these changes, especially regarding his ability to sleep soundly.

By this time, I’d already done extensive research on CBD oils and the benefits of medicinal Cannabis. I was strong in my belief that adding the CBD oil would be the completion of our treatment regimen. So, after some convincing of his mom, I ordered the best CBD oil I found during my research. I’m so elated to learn that I was correct.

Lincoln takes one veggie-cap (15 drops) of CBD oil a day. The facial tics, eye rolls and motor tics have essentially dissipated. He has not had an elongated episode in almost two months. His teachers have stated that they have really noticed a difference as well. I couldn’t be happier! An added bonus of not having my son on some medication to treat his symptoms and add toxins to his system, is that the CBD oil was half as much in cost and four times the usage.

I’m a pretty private person, so not many people know the pain and torment that my family has endured throughout this process. I also fought with myself to even share this story. But, I simply could not deny the sheer joy of the results that my son has seen with the use of CBD oil.

I say all that to say this. I’ve never been a huge proponent of legalizing marijuana, as I don’t smoke it. I’ve really just had a “live and let live” kind of approach to it. Now, that I’ve had the benefits of cannabis/hemp directly affect my family, I truly feel that there is a need to treat with what we have been naturally given.

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101 thoughts on “Cannabinoid Oil And My Son’s Tic Disorder”

      1. Great good news story. I’m 54 now and remember having ts as a child was finally diagnosed with ts at 22. I remember my mother bringing me to the family doctor when I was around 10 or 11. After her explaining to the doctor what I was doing, he told her it was a habit I had picked up and she should put me in the corner and make me do my tics for an hour. Saying I would get tired of doing it and stop. Not much was known of ts in the early 70’s. Not a fun condition to live with, but it doesn’t have to hold you back. I have a wife, 4 children and a successful career. I have been researching alternatives to the meds I’m on, and am sold on the benefits of cannabis oil. I actually have a doctors appointment scheduled in December. I will be asking for a prescription. Congratulations on the success with your son and wish me luck. Tom

        Liked by 1 person

      2. Hi Tom! Thanks for taking time to read this. Wow. Yes, I can relate. And you’re right…it doesn’t have to hold you back at all. Proud of you for persevering! All the best to you with your appointment and cannabis oil. Please let me know how it goes!

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      3. Jr,
        I just found your story online. What u describe here is exactly verbatim what happened to us this weekend and what is happening. My son is 10, had very very mild tics in his life, unnoticable by anyone. This weekend 1 week after middle school started, the exact fits u describe and your story is now our life too suddenly. In emergency attemp, we went and got the cbd oil to try this weekend, it did not work for us..

        We are headed to emergency now. I cannot stop crying and I am a wreck. I cannot thank you enough for sharing your story, it provides hope.

        Liked by 1 person

      4. Hi Christy. Thank you for reading….my heart goes out to you and your family. It does get better. I would also recommend finding a holistic pediatrician in your area. Ours has been great. It took about 7-10 days for the CBD oil to show its effects for us. Please keep me posted on how your son is doing.

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    1. did you ever find out what oil the broacaster was using for is sons ticks? i live in the uk myself and my son is 9 and suffers with ticks! its a huge thing giving cbd oil to children in the uk! i just want to know if you caught up with the oil he was using for is child and the benifits from using it?? would be very happy with a reply thank you.

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    2. My son was diagnosed with Auspergers, his tics started light but has gradually gotten out of hand. I need help, please tell me what you used and how I can get it.

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    1. Hi Stacey. He has been diagnosed with transient tic disorder. His tics are quite mild currently. I hope the CBD oil helps you. You’re very welcome. All the best to you and your family!

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      1. Hello. I just purchased the classic blend from Bluebird Botanicals today. In the meantime, I purchased some from the health food store that was EXTREMELY expensive and said 100 mg vs the 250 on the Bluebird stuff. I started really slow with 1/2 a dropper twice a day. Just wondering what the veggie cap size you give is amount wise? And do you give it twice a day? Thanks for any information. We are currently removing some of his ADHD meds that had horrendous side effects and I want to get him off his tic medicine which is not really helping (side effects too)
        Thanks so much for any helpful information.

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  1. You can’t just use Hemp Oil. Make sure it has CBD in it, and ask the seller for the lab test on it. There are a lot of substandard products out there that are just the industrial hemp and not the medicinal CBD hemp.

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  2. Hope your son is doing well 😊
    Looking for advise please, my daughter also has transient tic disorder. I have purchased 500mg CBD oil and I’m confused as the daily amount/dosage I can give her. She’s nearly 9yrs old
    Thanks

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    1. Hi Nat! Thank you so much. My son is 8 now, and takes 15 drops of 250mg / fl oz CBD Hemp oil per day. We give it to him in a veggie-cap so he can’t taste it. We started out giving him 15 drops, twice a day and eased back once he showed improvement.

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  3. Thank you for your prompt reply, I’m really happy I found this post as it has settled my reservations. I have all hope this will finally help my daughter as I am to, finding it difficult to watch her go through this. Glad to hear your son is in a better place too 😊

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  4. Hi. The studies I’ve read use the combination of CBD and THC in small doses with improvements. Did you use plain CBD, without the THC?

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  5. Hi my son is 11years and he has a mild form of Tourette Syndrom.
    I also want to try CBD and i wonder about the dosage.
    So if a 10ml bottle with 2.5 % CBD (total 250mg ) has 250 drops in it then every drop is 1mg CBD correct?
    How did you evaluate the dose of 15 drops ( now 30 )?! Do you have a formula for this or just try and error. You wrote that you put it in a vegie cap. Do you know if it is a difference of the dosage if you take it under the tongue as my son can not swallow caps or pills. A lot of questions , appreciate your Feedback, best regards Michael

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    1. Hi Michael. Yes, that’s correct. The recommended starting dose is 30 drops per day for adults (with no conversion for children). So, we tried half to start our son. Over time new, less distinguishable tics appeared and we incrementally increased until we reached 30 drops. Yes, it can be taken under the tongue. Lincoln just didn’t like the taste so we uses the veggie caps. Hope this helps. All the best to your son and your family!

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  6. You said you were hesitant to post…..but I want to thank you so much for deciding to. I haven’t been diagnosed with anything because neither of my parents cared much. But at 21 with a specific tic of winking at people and squeezing my eyes shut – and some others over the years – finding something to help me and not cost a fortune has been difficult. Mine are to the point that they’re causing me intense pain and migraines and I can’t hardly drive because they get really bad driving. You mentioned doTerra oils, I love my oils and they recently announced their copaiba oil, which is supposed to have similar effects as CBD oil. I am so eager to try both the copaiba oil and possibly CBD oil. I want to thank you for giving me some hope that I can find something to help me with my tics.

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    1. Hi BrooklynMK! Thank you so much for reading, and I’m glad it gives you hope. I’m also excited to try copaiba for my son! I’ve had dealt with the hard blinking and squeezing myself since I was a child and I know it can be disheartening. The oils help me, as well as eating right and staying active. Please keep me posted on how the copaiba works for you!

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  7. My grandson is 8 and has been blinking, grimacing, shrugging his shoulders, and now shaking his hands. I’m going today to but the CBD oil. I will keep you posted on the results. Thanks so much for the information. I was also going to try the brain mapping and neurofeedback. Just curious if anyone had tried that for tics. Thanks again.

    Liked by 1 person

  8. Thanks so much. I’m using Results RNA 200mg CBD. I will try 15 drops 3x/day and hope for the best. I’m also seeing a homeopath. I really need to give up sugar and gluten, though, too. My tics are driving me insane. Thanks for the post- I’m hopeful again!

    Liked by 1 person

    1. Wow. When I started reading this article it was the first time in my journey with my son’s tics that I didn’t feel alone. Thank you for writing this and sharing your story.

      We actually got hold of some CBD Oil today and my son had 1 drop and he very quickly commented about a reduction in his facial tics. I think it calmed his entire nervous system down.

      Are there any support groups or other website you know off for parents of kids with tics and tourettes?

      Liked by 1 person

      1. Hi Kohnny! Thank you for reading and I’m so glad you found some relief for your son. This can be a frightening journey. Yes, there is a Facebook group called Children with Tourettes and Tic Disorders. It is an awesome resource to my wife and I. My wife is also a doTerra Essential Oils advocate, so if you have any questions in that regard, please let me know. All the best to you and your family!

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  9. Thank you JR for all that you have shared about your
    family’s journey. It sounds like things are much improved!

    Wondering if anyone has mixed the oil with juice?
    Or are the veggie caps the best route?
    Not sure how caps will go with my son 😦

    Many thanks and best wishes to you all 🙂

    Liked by 1 person

    1. Thank you so much for taking time to read this. Yes, things are much better now.

      We tried it in water and juice first and Lincoln hated it because he doesn’t like the taste. I tried it and it wasn’t so bad. Please let me know how it goes. All the best to your son and your family!

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  10. Thanks for posting your story. My Son (9) has a similar story, except his symptoms started at age 4. None of the other treatments (antibiotics, anti-psychotics, IVIG) have helpled. He is diagnosed with PANDAS and we just started CBD oil to help reduce his tics. We started only 4-5 days ago with 15 drops/day and don’t see any improvement. It has a CBD:THC ratio of 10:1. I was thinking of increasing the THC content per things I read but it sounds like you gave only CBD. Any thoughts on whether to increase dosage (30 drops) or increase THC?

    Liked by 1 person

    1. Hi Ram! Thanks for reading. Yes, we increased the drops to 30 per day after about 3 months, when the tics resurfaced. We’ve only tried CBD and it has worked for him. But, each child is different. From our experience and from what I’ve gained from talking to other parents is that it doesn’t hurt to try an increased dosage and adjust as need be. Please let me know how your son is progressing. Much abundance to you and your family!

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  11. Hi. Thanks for the post. My son has a tics disorder. Not sure if it qualifies as Tourette’s as the tics intensity is very variable, sometimes not at all, sometimes a lot. In his case seems associated with anxiety, which is his underlying condition, I would say. Actually we were recommended CBD for both situations, so it may be quite a finding! We are in the Netherlands, must still see what the available compositions are. But one question: how long before you noticed improvement? In other words, how long before you know you should increase the dosage?

    Liked by 1 person

    1. One more question to add to the one above. As far as I understand, different concentrations in the oil (2.5%, 5% etc.) just mean that the number of daily drops should be adapted, is that correct? Otherwise, you can use whatever concentration?

      Liked by 1 person

      1. Correct. The dosage would depend on the concentration. Also, we’re prepared to adjust the dosage as he ages, based on his weight. Honestly, a lot of it has been trial and error until we find the recipe that is most effective. Please keep me posted on how your son is doing. All the best to you and your family!

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    2. Hi Rodrigo! Thanks for reading. We noticed a significant change in about 3 days. He went from really intense tics / episodes to just occasional facial tics within a week. The vocal tics have completely gone away. We did go from 15 to 30 drops per day once the facial tics resurfaced and they went away again.

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  12. Hi again J.R. Thanks for the reply. I did some research on this side and from the endless variety available in Europe, I ordered a CBD oil from a German (so “trustworty”…?) lab called Limucan. Concentration 5%, number of drops adapted accordingly. It says hemp extract diluted into pure hemp seed oil (50/50) which I think is the same as the one you ordered in the US. Specific stuff I can see: it mentions a extraction method based on CO2 and it has a proportion of CBD and CBD-A of 70/30.
    No idea if this makes a positive, negative or no difference at all, will just have to try it. But I was wondering if you or any other reader of this post has some insights about it. Thanks again!

    Liked by 2 people

  13. hi JR
    i have just found your article. My nephew in the UK is 11 years old and has chronic tic disorder which get more and more severe the older he gets (another way of saying your body isnt working properly!!!) from vaccine injury and also anxieties around different things and is very very thin, suffers from mouth ulcers, bloating, tummy upsets. Ive been looking for years for solutions- i hope i can find the Bluebird product in the UK or that they ship to there as it looks a really good quality product and is organic- very important as Cannabis is good at uptaking heavy metals from soils. Did your child have any other issues or just the tics. im wondering if CBO will unravel his problems bit by bit….

    Liked by 1 person

    1. Hi KT! Thank you for reading and reaching out. So sorry to hear about your nephew. Hopefully CBD can help. Bluebird is really amazing and the purest I’ve found. Not sure if they ship to the UK. They are really good with correspondence on their Facebook page if you want to check with them. I’ll reach out to them as well.

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      1. thanks Terri! you are so right! i actually did find them a few weeks ago- they have sent the samples and they are amazing and kind.
        so here goes!

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  14. Hi JR,
    Thank you so much for sharing your experience, our 7 was just diagnosed with motor tic disorder. My first search I found your article! I am going to order the CBD from Bluebird today. I have a question about dosing. My daughter is very petite and only weighs 45 pounds. I was wondering the size of your son and/or did you take that into consideration when figuring his first dosing?
    Again, I want to thank you so much for sharing! You are a light at what seems like a long dark tunnel in the beginning!

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    1. Hi Loren! Thank you for taking time to read this. My son is about 65 pounds. Yes, we did. the suggested dosage is 30 drops / day (15 morning and 15 night). We started with just the 15 drop in the morning and noticed a drastic improvement within a few days. After a couple of months, the tics started to pick back up and we increased to the 30 drops / day and they went away again. After another couple of months, we dropped back down to 15 per day and he’s been fine.

      Please keep me posted on how your daughter progresses! All the best to your family and thanks again for your kind words!

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      1. Thank you so much for this information! It is really hard to find information regarding tics/tourette’s and CBD oil for kids. My son is 13 and has had increasing symptoms including coprolalia and it is really starting to impact him at school. We have tried meds, acupuncture and CBIT…definitely willing to give this a try! Many thanks for sharing your journey!

        Liked by 1 person

      2. Hi Tango44! Thanks for reading! Yes, it can be tough trying to find what works for your child, as each case is different. We were all set to try acupuncture before we tried CBD also. Please let me know how it works for you! All the best to your son and your family!

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      3. Hi JR, I’ve been following this thread for a while.
        I commented a few months back. I even bought the BlueBird classic off your recommendation.
        Been giving my son 30 drops a day. However, I think it’s worth clarifying that this product from BlueBird is not CBD Oil. It’s Hemp Oil with some CBD in it. Think that’s worth clarifying?
        Maybe I’m missing something as I’m still learning and researching this field (like everyone else), but people keep referring to this all as CBD oil when from my understanding it’s HEMP oil.

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      4. Hi Daniel. Actually hemp contains CBD, so they are not one in the same. Hemp and cannabis both contain CBD, cannabis just has a higher content. Which is why I chose hemp for my son. So to answer your question, yes hemp is one of many types of CBD oils.

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  15. My daughter is 14 years old and her tics have been getting progressively worse as she’s gotten older. She was diagnosed with Tourette’s at age 10. I just ordered CBD in the form of gummy bears. I’m wondering if choosing to put them in food rather than straight oil is different? It says they are “Lab tested dispensary grade CBD” and a woman on my Tourette’s FB group said they worked great for her 9 year old daughter. I am not clear on dosage though. The bears are 150 mg. The woman on my board cut hers and gave her daughter a total of 30 mg. per day. My daughter is older and 120 pounds. Not sure where to start with dosing because I want room to increase/decrease and for her not to build a tolerance. Thank you for any advice.

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    1. Hi Chari. First off, thank your for reading and sharing. All the best to your daughter and family. I don’t have any direct experience with the gummy bears. However, I have heard that the sugars in CBD candies can counteract the effectiveness of the CBD. As for dosage, we use a 250mg Hemp CBD / fl oz. So a 10ml bottle with 2.5 % CBD (total 250mg ) has 250 drops in it then every drop is 1mg CBD. Hemp is not as potent as a direct cannabis strain, so we figured we could fluctuate the dosage more if needed. Hope this helps. Please keep me posted on how your daughter’s doing!

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  16. Hi there! Reading this was like you were telling our story for us. My son turned three in December and after almost a year and a half of telling our pediatrician something was going on, we finally got in to see a neurologist. Only for her to tell us that he has transcient tics, which I had diagnosed him with myself, because everyone else thought I was crazy and that nothing was wrong with him! Is your son fully vaccinated? I stopped vaccines fully after 6 months because after his round of shots back then I began noticing a twitch/ eye and neck roll. I really do feel vaccines injured my baby 🙁 How is your son doing now? Did he or Does he also incorporate loud words from time to time? Do certain situations trigger him? Forgive me for all these questions, but I’m desperate and after what seems like forever I finally found a post that’s shedding some light on this…

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    1. Hi iris. Thank you for reading and sharing! Yes, my son is fully vaccinated. He’ll be 9 in July and is steadily improving with continued CBD use. Yes, there are times when we have to remind him of his volume level in general and just certain random words he screams. And sometimes, loud noises/environments still trigger his tics. I hope your son continues to improve and your family finds peace in this situation.

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  17. Hello,
    I found these posts while researching CBD oil for my adult son. He is 30 and has dealt with a schizophrenia/Tourette’s type illness since he was 19. His tics are complex and involve whole conversations, so it truly sounds as though he is responding to voices. His doctors say now that he is not schizophrenic, however. He has tried multiple combinations of about 30 medications. He still has no definitive diagnosis after 12 years. He was a heavy marijuana user when he was younger, so we have always thought he has neurotransmitter damage from drug use. He also abused other drugs. Because of that, we have never considered marijuana in any form as something we would want to try. However, I am reading a lot about how CBD oil can help with those who abused marijuana in the past. His neuropsychiatrist said CBD oil wouldn’t hurt him. We started with a low concentration for the last few weeks because it was cheaper. Then, after reading about it, we ordered the 1000 mg. strength. He is going to vape it once or twice a day. I would consider it a miracle if this gives him his quality of life back after 12 years of trying various meds and having his life on hold due to his illness. Thanks for sharing your story. I will keep you posted, as there might be others who are dealing with this as disabled adults.

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  18. Great encouraging story! My son has tics as well but not too dramatic. We started to give him CBD two days ago, 10%/10ml bottle (5mg drop) 6 times a day. There are so many questions we have… I’m interested should we expect positive effect immediately or to wait for his body to adapt for some time? How long we should wait before trying with higher dosage? For now, he takes 30mg a day… It seams to me there are some effects but it’s too early to be sure. Thank you in advance!

    Liked by 1 person

    1. Hi! Thank you for reading! My son showed noticeable positive results after about 7 days. They continued to improved for about 60 days before they started coming back mildly. We increased his dosage to 30mg from 15mg per day. All the best to you and your family!

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      1. Thank you very much for reply! Today is seventh day since we started with CBD drops and we can see noticeable improvement as well from 6th day. Frequency of vocal and shaking tics deceased. After 4 days we increased dosage from 3×2 (5mg each) to 3×3 drops. Also, on 6th day we included magnesium as many people suggest.

        Liked by 1 person

      2. That is awesome! I’m so glad you’re getting results. It can be difficult, as everyone’s body reacts differently to everything. So, for you to find something that is showing results is great! Please keep me posted on your son’s progress…

        Liked by 1 person

  19. I read 2 studies cited on echoconnection.org website and both noted…
    “there is some weak evidence that cannabinoid medication may have an effect on obsessive-compulsive behaviour…but could not be validated.: My son has TS and severe OCD. His OCD is manageable right now – don’t want to stir that pot…Does anyone have experience with CBD oil who is diagnosed with both OCD and TS?

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  20. Hi, Thank you for your post. I live in the UK and my daughter is 7 with severe tourettes syndrome. The head jerk is affecting her quality of life and school work. She has been give topiramate but there is a lot of side effects. I am unsure whether to give her the meds I have been prescribed or CBD oil. My gut says CBD oil.

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    1. Hi Faye, I’m in the UK & in exact same boat as you. My daughter is 9 hers is motor & vocal Tics she’s now at a point we’re she doesn’t like to go out and is feeling embarrassed & not enjoying school anymore. I have been prescribed Topiramate last week which I’m hesitant to start because of the side effects. We also currently started Charlotte Web CBD oil but have not yet seen much change. Sorry it’s not much advice just wanted to resonate the same feelings. Think I’m going to try the meds whilst it’s half term so I can monitor her more
      Natalie

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      1. Hi Natalie, Thank you for your reply, I am reading up on topiramate and all I am reading is about negative side effects. I have been looking at which CBD oil to get, my partner is telling me to get the capasules, as the oil tastes bad. My daughter is off for Easter so like you this would be a good time to start her topiramate too. She does not seem to wax and wane much and just has the tics nearly everyday and OCD quite bad. My daughter is the same, she doesn’t want to go out much and the school say she is quiet in the classroom as she is trying hard to control her tics. She often gets taken out the classroom. The school say they have never had someone in their school with tourettes syndrome. It is hard isn’t it. Thank you for your reply, it means a lot. If you start the meds I would love to know how your daughter is getting on, I will let you know what I decide to do, it is nice to speak to someone in the same boat xxx

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      2. Hi Faye, yep sounds the same my daughters is constant every day it is really hard hun. I will let you know bout the meds although I’m scared to start it feel at my wits end trying to help her & feel like I need to try this as all kids are different so hopefully may not have all side effects. I’ve not tried capsules as she wouldn’t been able to swollow them. We have Charlotte Web mint chocolate flavour CBD drops she’s been fine taking that although does still have a slight herb taste. Hope the best for you all xxx

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  21. Hi. I’ve been in touch before and would like to quickly offer my testimony. I live in the Netherlands and used CBD oil 5% for my son (12) who suffers from tic disorder in connection with a (mild) autism spectrum condition. Our CBD comes from Germany and has some very good reviews, as well as a series of proper manufacturing reports. We started around mid-October and in the first 3 weeks or so the effect was amazing. Not only the tics, but also his impulsiveness, occasional aggressiveness and anxiety all but disappeared.

    After about two months of “peace and quiet” we noticed around Christmas that the anxiety had returned, although the tics had not. By then he was temporarily not in school, awaiting a free place which finally was provided in January. The new context, the need to adapt again to a new environment, teachers, methods, had an effect on him: the vocal tics returned quite strongly and began to disrupt the lessons and annoy the teachers like in the past. The anxiety reached again higher levels. For some time we tried to increase the dosage of CBD but after going slightly above the recommended amounts and seeing no big change, we decided with his doctor in mid-March to start giving Clonidine, a medication which is supposed to reduce tics substantially but whose side effects are not as serious as other medicines (basically temporary fatigue and lower blood pressure). Occasionally he takes an anti-anxiety pill, but not all the time.

    But we haven’t stopped the CBD and we are seeing whether is it worth combining it with the medication or gradually stop with the oil. For now the tics have reduced a lot, but I know they are floating, so it’s too soon to tell. My interpretation is that CBD produced a fantastic effect as a “body shock” to an unusual situation, but then his body developed some tolerance and when the struggle got more serious (new school, new sources of stress etc.), the improvements kind of blended down and the difference was no longer visible. Of course, I don’t know how he would be WITHOUT the oil, that’s why I’m hesitating to stop it.

    Not giving any conclusions here, just wanting to offer my testimony to others and welcome any comments!

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  22. Thank you so much for your post. My 8 year old son was diagnosed with a tic disorder 2 months ago, but seems to be ramping up fairly quickly and we’re sure he has Tourettes Syndrome.
    Sadly my brother died last year from brain cancer, but Cbd oil helped him so much with the seizure symptoms. A friend of mine suggested we use it for my sons very intrusive tics and I’m definitely going to give it a go. ☺️

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  23. hi Natalie and Faye
    my sister lives in the UK and im busting my gut to convince her to try CBD oil for her nearly 12 year old son with tourettes and other issues.
    is there any way i can get in touch with you -so you can get in touch with her?
    i think she needs to hear from some other mums who are trying this amazing plant for this illness.
    Ive sent her so many links to great articles, data and the rest of it so im quite baffled but i wont rest until that kid is better and has put on weight.
    He is alarmingly thin.

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    1. KT Prescott

      Your comment about being very thin caught my attention. Although my son does have tics and OCD, he does not have any weight loss. I am part of a group where I hear of this often though. So I wanted to share with you some info in case you were unaware. This group is called the PANDAS Network.

      My son is diagnosed with PANDAS. This condition includes symptoms like tics, OCD, ADHD, ODD, restricted eating and other serious issues. It is typically treated with antibiotics and IVIG and other treatments. My son whose symptoms were severe tics and moderate OCD and other symptoms has done long-term antibiotics and is one year post IVIG. His symptoms are next to none at this point. He has also been taking CBD oil (no THC) regularly the past few months which I think has also been a key factor in his improvement. Here is a link to PANDAS in case you want to look into it.

      http://www.pandasnetwork.org/understanding-pandaspans/what-is-pandas/

      My apologies if we I’m over stepping with his suggestion. Tics have an huge negative impact on my sons quality of life. So I thought I would share this info in hopes it might be helpful.

      Best
      Ram

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      1. hello Ram
        thank you so much- no such thing as overstepping in this murky world of what children are subjected to these days through vaccines and toxic world.
        i think its really useful to know this. Although my sister wouldn’t use antibiotics, im sure there are some good natural protocols to turn this around- i believe a streo infection?, which i also believe can be difficult to detect through basic GP test. Can you tell me what tests you used to diagnose this. was it a comprehensive stool test ?
        thanks again for responding!
        are you in UK?
        cheers
        KT

        Like

      2. I’m in the US.

        My son was clinically diagnosed based on history of spikes in his symptoms that seem to relate to illness. I did a detailed log of his whole life to find relationships between illness and symptom severity. We went to 4-5 types of doctors (immunologist, pediatrician, neurologist, PANDAS specialist, and other doctors) who all gave the same diagnosis. We tested him for many infections and he has strep, mycoplasma, tick-borne illnesses like Babesia and bartonella and possible candida. He went mis-diagnosed for 3-4 years before we got the PANDAS diagnosis. He either got tic disorder or Tourette diagnosis in the past.

        We have not done a stool test, although my wife and I have discussed it many times.

        He was treated with Antibiotics and IVIG. We don’t like antibiotics either and have been doing many herbal remedies. CBD appears to help but it’s very hard to confirm correlation vs causation.

        Currently he is almost symptom free. He has occasional tics, some compulsions and other things. It’s tooks us 18 months to get to this point. We think keeping him illness free has been a key factor. As you can imagine, this is very hard to do with a 9 yr old who is super energetic and social.

        Anyway, I hope this answers your questions.

        Ram

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  24. Hey Ram, you guys have done amazingly!
    were a lot of different tests involved in finding out all these things?
    Just interested as my sister has only tested her child with one blood test for strep a long time ago, but so many of the symptoms match the ones on the Pandas…
    You have to wonder how kids can get all these diseases, its pretty full on
    whats happening to so many of them.
    KT

    Like

    1. KT – We did a number of blood tests and many of them were repeats. Part of the reason is because different doctors do different tests and the other reason is parents becoming knowledgeable enough to ask for certain tests. We have learned a lot along the way.

      Some folks have done the Cunningham panel which detects auto antibodies. Others have done lumbar puncture and MRIs to detect inflammation. I would suggest that you look at the weblink I sent earlier for current testing recommendations. Unfortunately I’m not sure what doctors are available in UK for this illness.

      Ram

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  25. KT here, again! if theres anyone on this thread who lives in the UK and feels like dropping my sister a line about the usefulness of CBD in their childs tic protocol, that would be so great. i don’t think she has reached out to anyone with the same issue and her son. Any information/experience with natural protocols/diet/good diagnostic tests would be great.
    Her email is prescottf69@hotmail.com.
    She needs to hear from parents using CBD!!!! thanks heaps!

    Like

  26. Hi. I am 67 and recently read this story,so decided to try it. I have a motor tic disorder that the neurologist can’t seem to correct. They refuse to call it Tourettes, as I have no verbal outbursts. It consists of constant shoulder shrugging, head and neck flexing and teeth grinding. I started with a 15mg capsule, up to 30 mg a day and now at 50 mg a day. So far, (about 30-45 days) no effect other than I sleep somewhat better. Can you tell me how long you suppose it may take before I would hope to see results? Also, is fatigue a side effect? Thanks. BTW, I did learn that a person should check for drug interactions, especially if you are older. It conflicts with certain statin drugs (cholesterol) as well as Omeprozole (prilosec). There are a couple enzymes in CBD that reduce the effectiveness of these drugs and may even cause them to build up in the liver due to it’s inability to process them because of the CBD. Appreciate anyone’s feedback. Have a great day.

    Liked by 1 person

  27. Hi Robert. Thanks for reading. We noticed results in my son in about 7-10 days. But, I’m sure it would differ with an 8 year old on no medication. Thanks for the info. Have you heard anything regarding certain medications affecting the CBD oil effectiveness at all?

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    1. Thanks for responding. No, I was just told that CBD had the enzyme cytochrome P450 which interfered with certain statin drugs among others. He didn’t specify between capsules and oils. I am going to give this at least 90 days and see if what happens. Have a good day

      Like

  28. Hi Great article, thank you so much for sharing! My daughter has had Tourettes for years, she was diagnosed at 8, she is now 18. Her tics seem to have gotten worse and she has never wanted to try those horrible drugs for them, then we read about CBD oil. I have started her on it, but no improvement (only giving 20 MG a day) yet but I think I may not be dosing enough?
    Maybe you could help. I’m not sure what the strength of your CBD oil is but mine is as follows: 50 ml bottle 250MG CBD oil , each 1 ML dropper contains 5 MG of CBD oil.
    SO when you say you give 30 drops I’m assuming that your drops only have 1 MG of CBD oil in each dropper which equal 30 MG of CBD oil all together?
    So if I were to give 30 MG with my bottle I would only have to give 6 Drops,because there is 5 MG in each drop,.. correct?

    Or should I give more than 30 MG because she is considered an adult now?

    Like

    1. Hi Heidi! Thank you for reading. Yes, our dose equals 30MG. We had to tinker with it until we found a dosage that works. Increasing your dosage, as she is an adult now, certainly wouldn’t hurt.

      Like

  29. Thank you so much for sharing your success with the CBD oil. I have been contemplating this for my son as he suffers from tics and has now for about 8 months. It started as the eye roll and head pull down and now he has a goal throat clearing that is constant. He is always constant but it bothered by the constant torture of the tics. He is on medication for his ADHD and I want to go more natural as we also use Doterra oils. How did you know what dosage to use and where to get the oil. I have friends that work I distillaries and they have made recommendation but still want to have more options. Thank you for any help you can provide and thank yo uh again for sharing.

    Like

      1. Thank you for sharing your story and your experience with CBD oil to address your sons tics. My daughter was diagnosed with TS about a year ago, struggles with some motor and verbal tics as well as anxiety and some OCD. We are focused on finding natural remedies to help address these symptoms. Is the CBD oil still showing to be effective with relieving your son’s tics? Have you made any other adjustments to his dosage since your last reference to this above? Also, would you be able to share a little more about yourbuae OD the site era oils and how you use them and how they helped your son’s symptoms? Would you recommend this as well?

        Like

      2. Hi Karen. Thank you for reading this and reaching out! We are still using 15 drops each in morning and at night. We also give him 4 drops of Copaiba oil before bed. His progress and maintenance have been pretty steady. Occasionally, he will have a new tic develop…and usually after he’s been eating a bunch of junk or drinking lots of sugar. But, with the CBD it calms down within a day or two.

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  30. Hi!
    My son is 11yrs and has had tics since 6yrs. He is mild most days as we have done extensive diet changes and supplements. We decided to try DoTerras new copaiba pills that are just released. I started him on the oil 3 days ago ..1 drop under the tongue 1x a day but have noticed nothing yet. Have you tried copaiba at all?

    Like

    1. Hi Rebecca,

      Thank you for reaching out. Yes, we use the doTerra Copaiba. We use it more as a supplement to the Bluebird Classic CBD. When we tried Copaiba alone, it was not as effective in results.

      Like

  31. My daughter is 8 years old and started having a very bad eye roll tic a few months ago. Started using cbd but having a hard time figuring out dosage. I am giving a 350mg/15ml cbd oil the suggested dosage is 5-7drops(8mg) 1-3x a day. Been trying 5 drops twice a day with little improvement.

    Like

  32. My 5 year old son was diagnosed with transient tics several months ago. After seeing the results that my sister had treating her son who had seizures, i decided to research CBD Oil for tics and came across your story. Thank you!!!! My son has been on the Bluebird Classic CBD oil at 15 drops in the AM and 15 in the PM. I mix it with honey so it’s easier for him to tolerate. It’s only been a few days and the tics are pretty much gone. He’s more focused and less fidgety. I highly recommend this and pray that everyone has the best results.

    Like

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