Cannabinoid Oil And My Son’s Tic Disorder

Cannabinoid (CBD) oil has been a godsend since I found out my son was diagnosed with a tic disorder.

oilIn late October of 2016, my 7-year-old son, Lincoln, was diagnosed with Transient Tic Disorder. It’s fairly easy to say that this moment shook me like I’ve never been shook before. I have never been so scared in my life! I’m sure all fathers out there have experienced the hopelessness of having a sick child. It’s excruciating and overwhelming.

Around late August, I’d noticed Lincoln had started this heavy, exaggerated blinking. I didn’t think anything of it, initially, as I used to do the same thing as a kid…and still do occasionally. Back in the day, my parents thought it was some strange habit I’d picked up. Within a few weeks, Lincoln’s blinks had increased in rate and exertion. He’d also started rolling his eyes in really pronounced ways…sometimes so hard that he’d turn his head to the side.

Then, almost suddenly, he was experiencing these episodes that were like seizures. His eyes were rolling back in his head, his tongue would go limp or roll in his mouth. His face would grimace. His hands, feet and limbs would twitch erratically. And he would make these noises…groans, growls and moans. Sometimes he’d whistle or repeat words during these spells.

The episodes would last between 5 and 45 minutes. It was painful to watch. Especially, when he’d come out of the episodes with no recollection of what he’d just experienced. He could not hear us calling his name or feel us holding him while he endured these episodes. He’d snap out of them confused, exhausted and in physical pain.

From September to November, we’d made countless trips to the ER and doctor’s appointments, including spending Thanksgiving in the hospital Epilepsy Monitoring Unit. We were relieved that seizures had been ruled out. But, the thought that the tics were causing this much chaos was unnerving. We also had to remove Lincoln from the school bus and set up a treatment plan with his school, as he was sensitive to loud noise, bright lights and rapid movement. We were also advised that if the motor and vocal tics continued for a year, Lincoln would be diagnosed with Tourette’s Syndrome.

During this entire process, we drastically altered the family diet, eliminating dairy, white sugar and taking meat out of the house, except for one meal on the weekends as sort of a cheat day. We also started a daily essential oil regimen, using doTERRA oils. The Frankincense oil was a major support . Overall, we saw some healthy results and improvement from these changes, especially regarding his ability to sleep soundly.

By this time, I’d already done extensive research on CBD oils and the benefits of medicinal Cannabis. I was strong in my belief that adding the CBD oil would be the completion of our treatment regimen. So, after some convincing of his mom, I ordered the best CBD oil I found during my research. I’m so elated to learn that I was correct.

Lincoln takes one veggie-cap (15 drops) of CBD oil a day. The facial tics, eye rolls and motor tics have essentially dissipated. He has not had an elongated episode in almost two months. His teachers have stated that they have really noticed a difference as well. I couldn’t be happier! An added bonus of not having my son on some medication to treat his symptoms and add toxins to his system, is that the CBD oil was half as much in cost and four times the usage.

I’m a pretty private person, so not many people know the pain and torment that my family has endured throughout this process. I also fought with myself to even share this story. But, I simply could not deny the sheer joy of the results that my son has seen with the use of CBD oil.

I say all that to say this. I’ve never been a huge proponent of legalizing marijuana, as I don’t smoke it. I’ve really just had a “live and let live” kind of approach to it. Now, that I’ve had the benefits of cannabis/hemp directly affect my family, I truly feel that there is a need to treat with what we have been naturally given.

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39 thoughts on “Cannabinoid Oil And My Son’s Tic Disorder”

    1. Hi Stacey. He has been diagnosed with transient tic disorder. His tics are quite mild currently. I hope the CBD oil helps you. You’re very welcome. All the best to you and your family!

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  1. You can’t just use Hemp Oil. Make sure it has CBD in it, and ask the seller for the lab test on it. There are a lot of substandard products out there that are just the industrial hemp and not the medicinal CBD hemp.

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  2. Hope your son is doing well 😊
    Looking for advise please, my daughter also has transient tic disorder. I have purchased 500mg CBD oil and I’m confused as the daily amount/dosage I can give her. She’s nearly 9yrs old
    Thanks

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    1. Hi Nat! Thank you so much. My son is 8 now, and takes 15 drops of 250mg / fl oz CBD Hemp oil per day. We give it to him in a veggie-cap so he can’t taste it. We started out giving him 15 drops, twice a day and eased back once he showed improvement.

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  3. Thank you for your prompt reply, I’m really happy I found this post as it has settled my reservations. I have all hope this will finally help my daughter as I am to, finding it difficult to watch her go through this. Glad to hear your son is in a better place too 😊

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  4. Hi. The studies I’ve read use the combination of CBD and THC in small doses with improvements. Did you use plain CBD, without the THC?

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  5. Hi my son is 11years and he has a mild form of Tourette Syndrom.
    I also want to try CBD and i wonder about the dosage.
    So if a 10ml bottle with 2.5 % CBD (total 250mg ) has 250 drops in it then every drop is 1mg CBD correct?
    How did you evaluate the dose of 15 drops ( now 30 )?! Do you have a formula for this or just try and error. You wrote that you put it in a vegie cap. Do you know if it is a difference of the dosage if you take it under the tongue as my son can not swallow caps or pills. A lot of questions , appreciate your Feedback, best regards Michael

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    1. Hi Michael. Yes, that’s correct. The recommended starting dose is 30 drops per day for adults (with no conversion for children). So, we tried half to start our son. Over time new, less distinguishable tics appeared and we incrementally increased until we reached 30 drops. Yes, it can be taken under the tongue. Lincoln just didn’t like the taste so we uses the veggie caps. Hope this helps. All the best to your son and your family!

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  6. You said you were hesitant to post…..but I want to thank you so much for deciding to. I haven’t been diagnosed with anything because neither of my parents cared much. But at 21 with a specific tic of winking at people and squeezing my eyes shut – and some others over the years – finding something to help me and not cost a fortune has been difficult. Mine are to the point that they’re causing me intense pain and migraines and I can’t hardly drive because they get really bad driving. You mentioned doTerra oils, I love my oils and they recently announced their copaiba oil, which is supposed to have similar effects as CBD oil. I am so eager to try both the copaiba oil and possibly CBD oil. I want to thank you for giving me some hope that I can find something to help me with my tics.

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    1. Hi BrooklynMK! Thank you so much for reading, and I’m glad it gives you hope. I’m also excited to try copaiba for my son! I’ve had dealt with the hard blinking and squeezing myself since I was a child and I know it can be disheartening. The oils help me, as well as eating right and staying active. Please keep me posted on how the copaiba works for you!

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  7. My grandson is 8 and has been blinking, grimacing, shrugging his shoulders, and now shaking his hands. I’m going today to but the CBD oil. I will keep you posted on the results. Thanks so much for the information. I was also going to try the brain mapping and neurofeedback. Just curious if anyone had tried that for tics. Thanks again.

    Liked by 1 person

  8. Thanks so much. I’m using Results RNA 200mg CBD. I will try 15 drops 3x/day and hope for the best. I’m also seeing a homeopath. I really need to give up sugar and gluten, though, too. My tics are driving me insane. Thanks for the post- I’m hopeful again!

    Liked by 1 person

    1. Wow. When I started reading this article it was the first time in my journey with my son’s tics that I didn’t feel alone. Thank you for writing this and sharing your story.

      We actually got hold of some CBD Oil today and my son had 1 drop and he very quickly commented about a reduction in his facial tics. I think it calmed his entire nervous system down.

      Are there any support groups or other website you know off for parents of kids with tics and tourettes?

      Liked by 1 person

      1. Hi Kohnny! Thank you for reading and I’m so glad you found some relief for your son. This can be a frightening journey. Yes, there is a Facebook group called Children with Tourettes and Tic Disorders. It is an awesome resource to my wife and I. My wife is also a doTerra Essential Oils advocate, so if you have any questions in that regard, please let me know. All the best to you and your family!

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  9. Thank you JR for all that you have shared about your
    family’s journey. It sounds like things are much improved!

    Wondering if anyone has mixed the oil with juice?
    Or are the veggie caps the best route?
    Not sure how caps will go with my son 😦

    Many thanks and best wishes to you all 🙂

    Liked by 1 person

    1. Thank you so much for taking time to read this. Yes, things are much better now.

      We tried it in water and juice first and Lincoln hated it because he doesn’t like the taste. I tried it and it wasn’t so bad. Please let me know how it goes. All the best to your son and your family!

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  10. Thanks for posting your story. My Son (9) has a similar story, except his symptoms started at age 4. None of the other treatments (antibiotics, anti-psychotics, IVIG) have helpled. He is diagnosed with PANDAS and we just started CBD oil to help reduce his tics. We started only 4-5 days ago with 15 drops/day and don’t see any improvement. It has a CBD:THC ratio of 10:1. I was thinking of increasing the THC content per things I read but it sounds like you gave only CBD. Any thoughts on whether to increase dosage (30 drops) or increase THC?

    Liked by 1 person

    1. Hi Ram! Thanks for reading. Yes, we increased the drops to 30 per day after about 3 months, when the tics resurfaced. We’ve only tried CBD and it has worked for him. But, each child is different. From our experience and from what I’ve gained from talking to other parents is that it doesn’t hurt to try an increased dosage and adjust as need be. Please let me know how your son is progressing. Much abundance to you and your family!

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  11. Hi. Thanks for the post. My son has a tics disorder. Not sure if it qualifies as Tourette’s as the tics intensity is very variable, sometimes not at all, sometimes a lot. In his case seems associated with anxiety, which is his underlying condition, I would say. Actually we were recommended CBD for both situations, so it may be quite a finding! We are in the Netherlands, must still see what the available compositions are. But one question: how long before you noticed improvement? In other words, how long before you know you should increase the dosage?

    Liked by 1 person

    1. One more question to add to the one above. As far as I understand, different concentrations in the oil (2.5%, 5% etc.) just mean that the number of daily drops should be adapted, is that correct? Otherwise, you can use whatever concentration?

      Liked by 1 person

      1. Correct. The dosage would depend on the concentration. Also, we’re prepared to adjust the dosage as he ages, based on his weight. Honestly, a lot of it has been trial and error until we find the recipe that is most effective. Please keep me posted on how your son is doing. All the best to you and your family!

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    2. Hi Rodrigo! Thanks for reading. We noticed a significant change in about 3 days. He went from really intense tics / episodes to just occasional facial tics within a week. The vocal tics have completely gone away. We did go from 15 to 30 drops per day once the facial tics resurfaced and they went away again.

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  12. Hi again J.R. Thanks for the reply. I did some research on this side and from the endless variety available in Europe, I ordered a CBD oil from a German (so “trustworty”…?) lab called Limucan. Concentration 5%, number of drops adapted accordingly. It says hemp extract diluted into pure hemp seed oil (50/50) which I think is the same as the one you ordered in the US. Specific stuff I can see: it mentions a extraction method based on CO2 and it has a proportion of CBD and CBD-A of 70/30.
    No idea if this makes a positive, negative or no difference at all, will just have to try it. But I was wondering if you or any other reader of this post has some insights about it. Thanks again!

    Liked by 1 person

  13. hi JR
    i have just found your article. My nephew in the UK is 11 years old and has chronic tic disorder which get more and more severe the older he gets (another way of saying your body isnt working properly!!!) from vaccine injury and also anxieties around different things and is very very thin, suffers from mouth ulcers, bloating, tummy upsets. Ive been looking for years for solutions- i hope i can find the Bluebird product in the UK or that they ship to there as it looks a really good quality product and is organic- very important as Cannabis is good at uptaking heavy metals from soils. Did your child have any other issues or just the tics. im wondering if CBO will unravel his problems bit by bit….

    Liked by 1 person

    1. Hi KT! Thank you for reading and reaching out. So sorry to hear about your nephew. Hopefully CBD can help. Bluebird is really amazing and the purest I’ve found. Not sure if they ship to the UK. They are really good with correspondence on their Facebook page if you want to check with them. I’ll reach out to them as well.

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